RE: It's my cancer, I decide what to do with it. [#FreedomFriday: Freedom of Natural Medicine.] by bifilarcoil

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· @bifilarcoil ·
We all take healthcare for granted, and this is why healthcare seems to exploit our trust in them.  Still we should not disregard modern medicine. We need a balance. And a better system to find trust IN medicine, Natural AND Non-natural.

My father died of Leukemia, and having seen how that went down there I have lost a lot of trust in the Dutch healthcare system. Not just when it comes to cancer but the entire manner how the system deals with humans.

The system just makes a diagnose, then pick the most common way to deal with it and JUST pushes that option, this is how we  solve this. And whatever a patient's opinion is is secondary. Patients are treated as stupid. They get overwhelmed with Pharma Speak, and as a result they shrug and accept whatever the docters decide.
That's not freedom...  That's pushing a product that makes the docters wallet happy.

But the patients questions are left unanswered. The patients don't even know what questions to ask as they are kept in the dark with the excuse that the medical staff simplydoesn't have the time.  

Once doctors speak to patients in normal understandable language again, so that they can make educated decisions about their own body THEN they have the freedom and control back over their own body.

But how to turn this back around again?

How to make academia use human language?
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@riverflows ·
Oh that 'Don't have the time" is so crap. I remember when Dad was ill they forgot to tell him that he was in remission and he waits 2 weeks for tests! Like.. you think that maybe that's something a patient would like to know??? Sorry about your Dad.. sounds like you all had a bad experience. We have nothing but good things to say about how they treated my Dad though. We were lucky. 

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@bifilarcoil ·
Over here the medical staff is extremely overloaded. And they work very hard.  They really don't have the time to explain the same stuff over and over again to the next patient who is overwhelmed by medical speak.  The nurses did all they could (as far as it is allowed). It all looks great, until you start to question why certain things are not allowed. Why is a corporate nutrient drink that tastes as horrible as it smells being pushed as if it is something magical.  While the hospital food is not as nutritious as it could be.  My day survived an aneurysm several years ago so i'm grateful that the medical system rescued him and gave him a second chance.  Though it seems that the blood he received is the reason he got leukemia later on in life.  Its just the things that you notice that are there for 'corporate reasons' and those push actual healthcare on the side.   To some extend healthcare seems to have turned into a one size fit's all system. And if it doesn't work for you, ah bad luck...   Or if youdon't want certain 'standard' chemicals being pumped into your body then there simply is no alternative.
This is how we repair an engine, ... with a hammer. deal with it...  :-)
And for an aneurysm that indeed works. Much respect for the brave people who just cut, dig up the leaky pipe and jam a silicone tube in to fix it, and stitch everything together again.   It's just that corporate reasons should not make the rules.
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@immarojas ·
Some doctors do take time to explain and answer questions..this i have seen where i work.. i guess they differ in that way. Most times, nurses are the ones using layman's terms for patients and their families.

But then again, doctors will only spend 5 minutes with their patients, the rest of the time will be nurses. How each one practice in keeping their patients' interest is what we see today.
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@bifilarcoil ·
The medical jargon just doesn't make sense to people who are rushed into a hospital then get an emotional experience and on top need to digest all the medical speak they never had to deal with.  This makes it impossible for elderly people to make decisions

First they are happy to open their eyes an be alive.
the next second a specialist overwhelms them with words they never knew existed.
then the next person waters it down into layman's terms that cause even more confusion.  My dad would say, why speak Latin to me? i'm in a Dutch hospital, right?
And right after that the family rolls in with all kinds of questions. Add bad hearing, and people who just don't really listen.  And an already exhaused patient is confused to the max by all the chatter.  Happy to be alive, and happy to have the people around. But unaware that the information is getting lost on the spot. 
Then the next day all that confusion is in the mind. And then the specialists come back to 'make a decision' And as the patient is lost for words the specialist just do what is common. And all is done and dusted.   
Not really anyone's fault.  But if the first explanation had been in 'normal' language that the patient had been able to comprehend then things would have been a lot less difficult for the patient.  
It's stuff like that that seems to go under the radar.  As all people do this. If a car mechanic explains how to fix car he basically does the same. :-)
No hard feelings to anyone,i'm grateful that there are so many people who really go trough great lengths to save other peoples lives.  It's often very underestimated.
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@immarojas ·
If you ask me to translate what i know in my language, i will struggle. In combination of english and filipino yes.

Because the learning and research are all in English...even in english-speaking countries, your best bet are nurses. 

But i can see what you mean, though i am proud where i work in such a way that we advocate for our patients and tell-off doctors sometimes.

I think time is of the essence sometimes.
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