Merhaba Steemit Türkiye Ailesi Steemit Türkiye topluluğunda @svm038 ve @ispin'in önerileri ile başlatılan iyilik etkinliğine destek olmak için bu paylaşımı yapmaya karar verdim. Desteğe ihtiyacı olan o kadar çok kişi var ki damlaya damlaya göl olur misali bizlerin bir damlası büyük mucizelere dönüşebilir. Bu haftaki bebeğimiz Amine Sultan Beyazdurna. >Hello Steemit Turkey Family >Steemit @svm038 in the Turkish community and I decided to share this sharing to support the goodwill event initiated with the recommendations of @ispin. There are so many people who need support that a drop of us can turn into great miracles, like a drop of lake. This week's baby is Amine Sultan Beyazdurna. ![Screenshot_2021-06-14-15-00-31-715_com.instagram.android~2.jpg](https://cdn.steemitimages.com/DQmXKwBDxvitrp8ZRREjD6JkatgBm4yqf4c5LDAB4GkXnoN/Screenshot_2021-06-14-15-00-31-715_com.instagram.android~2.jpg) [Kaynak](https://www.instagram.com/p/CPQr6B4DlOW/?utm_source=ig_web_copy_link) >SMA (Spinal Muskuler Atrofi) omurilikte bulunan ön boynuz motor sinir hücrelerini etkileyerek hareket kabiliyetini kısıtlayan bir kas hastalığıdır. >Belirtiler bireyler arası farklılıklar göstermekle birlikte; genellikle aşağıdaki şekillerde görülür. Kurbağa bacağı pozisyonunda yatma Dilde fasikilasyon Gevşek kas yapısı Azalmış kol-bacak hareketleri Azalmış derin tendon reflexleri Kuvvetsizlik Yürüyememe Solunum sistemi tutulması Beslenme bozuklukları Cılız ağlama Yaşıtlarından geride kalma, yavaş hareket etme >SMA (Spinal Muscular Atrophy) is a muscular disease that restricts mobility by affecting the front horn motor nerve cells in the spinal cord. >Although the distinctions differ between individuals; it usually appears in the following ways. Lying in the position of frog's leg Language fascination Loose muscle structure Reduced arm-leg movements Reduced deep tendon reflexes Inaction Not being able to walk Respiratory system retention Nutritional disorders Don't cry skinny Don't fall behind your peers, move slowly [Kaynak](https://www.sma.org.tr/sma-nedir) Sma hastası olan bebekler nefes almakta zorlandıkları için solunum cihazlarına bağlı bir yaşam sürmeleri gerekiyor. Beslenme ve yutmada zorluk yaşıyorlar. Başlarını tutmakta güçlük ve hareketlerinde kısıtlanma meydana geliyor. Belli bir aşamadan sonra kendi başlarına ayakta duramıyorlar. Sık solunum yolu enfeksiyonu ile birlikte öksürük tekrarlıyor. >Babies with SMA have difficulty breathing, so they need to live a life connected to breathing apparatus. They have difficulty feeding and swallowing. There's difficulty holding their heads and restrictions on their movements. They can't stand on their own after a certain stage. Cough repeats with frequent respiratory infection. ![Screenshot_2021-06-14-14-56-25-426_com.instagram.android~2.jpg](https://cdn.steemitimages.com/DQmWBX18UYLeQXwbU3D737YPiAqQpixmQnVVxV3eBn6ewfD/Screenshot_2021-06-14-14-56-25-426_com.instagram.android~2.jpg) [Kaynak](https://www.instagram.com/p/CPxmu3GDCZg/?utm_source=ig_web_copy_link) Sma hastası olan bir ailenin her dakika çocuğu ile ilgilenip, fizik tedavi hareketlerini yaptırması gerekiyor. Solunum cihazı alınıp düzenli bir şekilde bebeğin boğazına aspire yapılması bebek ve aile için aşırı yıpratıcı bir süreçtir. >A family with SMA needs to take care of their child every minute and get physical therapy. Taking a respirator and regularly aspirating into the baby's throat is an extremely debilitating process for the baby and the family. ![Screenshot_2021-06-14-14-57-03-978_com.instagram.android~2.jpg](https://cdn.steemitimages.com/DQmbRFeQ7rSHRj9WDyqkwaVogio3yXp6Qrmu8SGRZt7knuv/Screenshot_2021-06-14-14-57-03-978_com.instagram.android~2.jpg) [Kaynak](https://www.instagram.com/p/CQD-9_cjr0F/?utm_source=ig_web_copy_link) Dileğim; yurt dışından bu kadar pahalıya ulaşılmaya çalışılan ilaçların ülkemizde Sma hastası bebeklere kolaylıkla ulaşması. Tüm bebeklerin bu acıdan özgürleşerek ailelerinin gözlerinin içine gülerek, sağlıkla bakabilmesini diliyorum. Ailelerin de bebeklerini kaybedecekleri güne kaç gün kaldı diye saymak yerine ,gelecek için güzel planlar yapmalarını niyet ediyorum. >My wish is that you will not be able to it is easy to reach babies with Sma in our country with drugs that are trying to reach such a cost from abroad. I wish that all babies can be freed from this pain and look their families in the eye with laughter and health. I intend for parents to make good plans for the future, rather than counting how many days are left before they lose their baby. Bu postuma gelen tüm ödeme @svm038 hesabına gönderilerek Amine Sultan Beyazdurna'ınn ailesine ulaştırılacaktır. >All payments received in this post will be sent to the @svm038 account and delivered to Amine Sultan Beyazdurna's family. Bu link [link](https://maylink.cf/amine/) ile Valilik onaylı Amine'nin ailesinin başlatmış olduğu yardım hesaplarına ulaşabilirsiniz. Umarım kruatörlerde hazırladığım bu postuma destek vererek İyilik Etkinliğine destek olurlar. >With this link [link](https://maylink.cf/amine/) you can access the help accounts initiated by Amine's family approved by the Governorship. I hope they will support the Goodness Event by supporting this post I have prepared in the cruisers. Tüm Sma hastalığı olan bebeklere ve tüm hastalara şifalar diliyorum. >I wish healing to all babies with Sma disease and all patients.
post_id | 91,945,734 |
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author | gulfuren |
permlink | steemit-turkiye-iyilik-etkinligi-goodness-event-or-100-prize-of-this-post-will-be-sent-to-the-baby-with-sma-amine-sultan |
category | hive-179764 |
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created | 2021-06-14 12:33:24 |
last_update | 2021-06-14 12:33:24 |
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root_title | "Steemit Turkiye İyilik Etkinliği - GOODNESS EVENT | 100% PRIZE OF THIS POST WILL BE SENT TO THE BABY WITH SMA- Amine Sultan Beyazdurna" |
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andravasko | 0 | 0 | 7.5% | ||
habercitr | 0 | 11,584,986,849 | 15% | ||
serpilem | 0 | 258,094,233 | 15% | ||
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muratkbesiroglu | 0 | 2,363,275,527 | 7.5% | ||
razzor | 0 | 1,629,598,279 | 15% | ||
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v-crypto | 0 | 288,323,562 | 15% | ||
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pygmalion34 | 0 | 5,085,224,664 | 15% | ||
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Allah bu ve bunun gibi olan tüm yavrulara şifa versin🙏🏻 Ne kadar güzel bir etkinlik. Umarım küratörler görür ve çok yüksek bir upvote yaparlar🙏🏻🙏🏻
post_id | 91,946,022 |
---|---|
author | tugcenindolabi |
permlink | quozl9 |
category | hive-179764 |
json_metadata | {"app":"steemit\/0.2"} |
created | 2021-06-14 12:48:45 |
last_update | 2021-06-14 12:48:45 |
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root_title | "Steemit Turkiye İyilik Etkinliği - GOODNESS EVENT | 100% PRIZE OF THIS POST WILL BE SENT TO THE BABY WITH SMA- Amine Sultan Beyazdurna" |
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Amin🙏🏻 Rabbim tüm hastalara şifa versin 🙏🏻
post_id | 91,946,946 |
---|---|
author | gulfuren |
permlink | qup1n8 |
category | hive-179764 |
json_metadata | {"app":"steemit\/0.2"} |
created | 2021-06-14 13:33:09 |
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root_title | "Steemit Turkiye İyilik Etkinliği - GOODNESS EVENT | 100% PRIZE OF THIS POST WILL BE SENT TO THE BABY WITH SMA- Amine Sultan Beyazdurna" |
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Rabbim tüm iyilikleri izi kabul etsin 🙏
post_id | 91,947,007 |
---|---|
author | svm038 |
permlink | qup1sr |
category | hive-179764 |
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Amin. Hepimizin inşallah
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---|---|
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category | hive-179764 |
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Allah hasta yavrularımıza şifa versin inşallah🙏
post_id | 91,949,858 |
---|---|
author | arzum |
permlink | qup72z |
category | hive-179764 |
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root_title | "Steemit Turkiye İyilik Etkinliği - GOODNESS EVENT | 100% PRIZE OF THIS POST WILL BE SENT TO THE BABY WITH SMA- Amine Sultan Beyazdurna" |
beneficiaries | [] |
max_accepted_payout | 1,000,000.000 SBD |
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Amin
post_id | 91,958,342 |
---|---|
author | gulfuren |
permlink | qupo91 |
category | hive-179764 |
json_metadata | {"app":"steemit\/0.2"} |
created | 2021-06-14 21:41:27 |
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root_title | "Steemit Turkiye İyilik Etkinliği - GOODNESS EVENT | 100% PRIZE OF THIS POST WILL BE SENT TO THE BABY WITH SMA- Amine Sultan Beyazdurna" |
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Emeginize saglik....@ispinin başlatıgı bu yardım ve @sevim38 de bizlerle devam ettırdıgı için tesekkürler insallah hasta olan çocuklara faydamız büyük olur.🙏
post_id | 91,950,284 |
---|---|
author | melanur |
permlink | qup7xj |
category | hive-179764 |
json_metadata | {"users":["ispinin","sevim38"],"app":"steemit\/0.2"} |
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Amin inşallah. Güzel haberlerini burada paylaşmayı diliyorum.
post_id | 91,958,353 |
---|---|
author | gulfuren |
permlink | qupoa0 |
category | hive-179764 |
json_metadata | {"app":"steemit\/0.2"} |
created | 2021-06-14 21:42:00 |
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root_title | "Steemit Turkiye İyilik Etkinliği - GOODNESS EVENT | 100% PRIZE OF THIS POST WILL BE SENT TO THE BABY WITH SMA- Amine Sultan Beyazdurna" |
beneficiaries | [] |
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Yüreğine sağlık 🙏 Rabbim inşallah en kısa sürede şifaya kavuştursun bu yavruları.
post_id | 91,950,405 |
---|---|
author | ispin |
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category | hive-179764 |
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root_title | "Steemit Turkiye İyilik Etkinliği - GOODNESS EVENT | 100% PRIZE OF THIS POST WILL BE SENT TO THE BABY WITH SMA- Amine Sultan Beyazdurna" |
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Teşekkür ediyorum.vVesile olanlardan Allah razı olsun. Amin
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root_title | "Steemit Turkiye İyilik Etkinliği - GOODNESS EVENT | 100% PRIZE OF THIS POST WILL BE SENT TO THE BABY WITH SMA- Amine Sultan Beyazdurna" |
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Rabbim inşallah şifasını versin. Çok zor ve üzücü bir hastalık. Emeğine sağlık canım 🤗
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root_title | "Steemit Turkiye İyilik Etkinliği - GOODNESS EVENT | 100% PRIZE OF THIS POST WILL BE SENT TO THE BABY WITH SMA- Amine Sultan Beyazdurna" |
beneficiaries | [] |
max_accepted_payout | 1,000,000.000 SBD |
percent_steem_dollars | 10,000 |
Amin. Teşekkür ediyorum
post_id | 91,958,372 |
---|---|
author | gulfuren |
permlink | qupobl |
category | hive-179764 |
json_metadata | {"app":"steemit\/0.2"} |
created | 2021-06-14 21:43:00 |
last_update | 2021-06-14 21:43:00 |
depth | 2 |
children | 0 |
net_rshares | 0 |
last_payout | 2021-06-21 21:43:00 |
cashout_time | 1969-12-31 23:59:59 |
total_payout_value | 0.000 SBD |
curator_payout_value | 0.000 SBD |
pending_payout_value | 0.000 SBD |
promoted | 0.000 SBD |
body_length | 23 |
author_reputation | 15,174,385,435,089 |
root_title | "Steemit Turkiye İyilik Etkinliği - GOODNESS EVENT | 100% PRIZE OF THIS POST WILL BE SENT TO THE BABY WITH SMA- Amine Sultan Beyazdurna" |
beneficiaries | [] |
max_accepted_payout | 1,000,000.000 SBD |
percent_steem_dollars | 10,000 |
Allah şifa versin, birlikten kuvvet doğar inşallah bizim de güzel bir katkımız olur 🙏🏻
post_id | 91,952,963 |
---|---|
author | bubbling |
permlink | qupdth |
category | hive-179764 |
json_metadata | {"app":"steemit\/0.2"} |
created | 2021-06-14 17:56:06 |
last_update | 2021-06-14 17:56:06 |
depth | 1 |
children | 1 |
net_rshares | 0 |
last_payout | 2021-06-21 17:56:06 |
cashout_time | 1969-12-31 23:59:59 |
total_payout_value | 0.000 SBD |
curator_payout_value | 0.000 SBD |
pending_payout_value | 0.000 SBD |
promoted | 0.000 SBD |
body_length | 86 |
author_reputation | 20,786,328,085,148 |
root_title | "Steemit Turkiye İyilik Etkinliği - GOODNESS EVENT | 100% PRIZE OF THIS POST WILL BE SENT TO THE BABY WITH SMA- Amine Sultan Beyazdurna" |
beneficiaries | [] |
max_accepted_payout | 1,000,000.000 SBD |
percent_steem_dollars | 10,000 |
Amin.İnşallah
post_id | 91,958,380 |
---|---|
author | gulfuren |
permlink | qupoc2 |
category | hive-179764 |
json_metadata | {"app":"steemit\/0.2"} |
created | 2021-06-14 21:43:15 |
last_update | 2021-06-14 21:43:15 |
depth | 2 |
children | 0 |
net_rshares | 0 |
last_payout | 2021-06-21 21:43:15 |
cashout_time | 1969-12-31 23:59:59 |
total_payout_value | 0.000 SBD |
curator_payout_value | 0.000 SBD |
pending_payout_value | 0.000 SBD |
promoted | 0.000 SBD |
body_length | 13 |
author_reputation | 15,174,385,435,089 |
root_title | "Steemit Turkiye İyilik Etkinliği - GOODNESS EVENT | 100% PRIZE OF THIS POST WILL BE SENT TO THE BABY WITH SMA- Amine Sultan Beyazdurna" |
beneficiaries | [] |
max_accepted_payout | 1,000,000.000 SBD |
percent_steem_dollars | 10,000 |
Allahım şifa bekleyen herkese şifa versin inşallah.
post_id | 91,957,568 |
---|---|
author | habercitr |
permlink | qupm6h |
category | hive-179764 |
json_metadata | {"app":"steemit\/0.2"} |
created | 2021-06-14 20:56:45 |
last_update | 2021-06-14 20:56:45 |
depth | 1 |
children | 1 |
net_rshares | 0 |
last_payout | 2021-06-21 20:56:45 |
cashout_time | 1969-12-31 23:59:59 |
total_payout_value | 0.000 SBD |
curator_payout_value | 0.000 SBD |
pending_payout_value | 0.000 SBD |
promoted | 0.000 SBD |
body_length | 51 |
author_reputation | 101,546,899,243,308 |
root_title | "Steemit Turkiye İyilik Etkinliği - GOODNESS EVENT | 100% PRIZE OF THIS POST WILL BE SENT TO THE BABY WITH SMA- Amine Sultan Beyazdurna" |
beneficiaries | [] |
max_accepted_payout | 1,000,000.000 SBD |
percent_steem_dollars | 10,000 |
Amin
post_id | 91,958,384 |
---|---|
author | gulfuren |
permlink | qupoce |
category | hive-179764 |
json_metadata | {"app":"steemit\/0.2"} |
created | 2021-06-14 21:43:27 |
last_update | 2021-06-14 21:43:27 |
depth | 2 |
children | 0 |
net_rshares | 0 |
last_payout | 2021-06-21 21:43:27 |
cashout_time | 1969-12-31 23:59:59 |
total_payout_value | 0.000 SBD |
curator_payout_value | 0.000 SBD |
pending_payout_value | 0.000 SBD |
promoted | 0.000 SBD |
body_length | 4 |
author_reputation | 15,174,385,435,089 |
root_title | "Steemit Turkiye İyilik Etkinliği - GOODNESS EVENT | 100% PRIZE OF THIS POST WILL BE SENT TO THE BABY WITH SMA- Amine Sultan Beyazdurna" |
beneficiaries | [] |
max_accepted_payout | 1,000,000.000 SBD |
percent_steem_dollars | 10,000 |
merhaba ; iyilik etkinlği için %50 oy verildi. ![Bu gönderi Steemit-Türkiyenin Kuratörlüğünü yapan -steemcurator06 tarafından oy verildi..png](https://cdn.steemitimages.com/DQmU498axd24L76xtiZBFXirFK47p79CFWVJ85md7VWcGuA/Bu%20g%C3%B6nderi%20Steemit-T%C3%BCrkiyenin%20Kurat%C3%B6rl%C3%BC%C4%9F%C3%BCn%C3%BC%20yapan%20-steemcurator06%20taraf%C4%B1ndan%20oy%20verildi..png)
post_id | 92,054,483 |
---|---|
author | steemcurator06 |
permlink | quwp2z |
category | hive-179764 |
json_metadata | {"image":["https:\/\/cdn.steemitimages.com\/DQmU498axd24L76xtiZBFXirFK47p79CFWVJ85md7VWcGuA\/Bu%20g%C3%B6nderi%20Steemit-T%C3%BCrkiyenin%20Kurat%C3%B6rl%C3%BC%C4%9F%C3%BCn%C3%BC%20yapan%20-steemcurator06%20taraf%C4%B1ndan%20oy%20verildi..png"],"app":"steemit\/0.2"} |
created | 2021-06-18 16:42:39 |
last_update | 2021-06-18 16:42:39 |
depth | 1 |
children | 1 |
net_rshares | 0 |
last_payout | 2021-06-25 16:42:39 |
cashout_time | 1969-12-31 23:59:59 |
total_payout_value | 0.000 SBD |
curator_payout_value | 0.000 SBD |
pending_payout_value | 0.000 SBD |
promoted | 0.000 SBD |
body_length | 372 |
author_reputation | 992,354,096,132 |
root_title | "Steemit Turkiye İyilik Etkinliği - GOODNESS EVENT | 100% PRIZE OF THIS POST WILL BE SENT TO THE BABY WITH SMA- Amine Sultan Beyazdurna" |
beneficiaries | [] |
max_accepted_payout | 1,000,000.000 SBD |
percent_steem_dollars | 10,000 |
Teşekkür ediyorum
post_id | 92,056,437 |
---|---|
author | gulfuren |
permlink | quwtv8 |
category | hive-179764 |
json_metadata | {"app":"steemit\/0.2"} |
created | 2021-06-18 18:25:57 |
last_update | 2021-06-18 18:25:57 |
depth | 2 |
children | 0 |
net_rshares | 0 |
last_payout | 2021-06-25 18:25:57 |
cashout_time | 1969-12-31 23:59:59 |
total_payout_value | 0.000 SBD |
curator_payout_value | 0.000 SBD |
pending_payout_value | 0.000 SBD |
promoted | 0.000 SBD |
body_length | 17 |
author_reputation | 15,174,385,435,089 |
root_title | "Steemit Turkiye İyilik Etkinliği - GOODNESS EVENT | 100% PRIZE OF THIS POST WILL BE SENT TO THE BABY WITH SMA- Amine Sultan Beyazdurna" |
beneficiaries | [] |
max_accepted_payout | 1,000,000.000 SBD |
percent_steem_dollars | 10,000 |