Viewing a response to: @redrica/want-some-oxy-a-hug-initiative-i-m-doing-at-steemfest3-in-support-of-spoonies-239cc7c0dc61e
I started steeming 2 years ago in "recovery"to give me something to focus on besides pain and fatigue. as it turns out I am still stuck home trying to gather my strength. I have not read many steemfest posts, getting to the local shops is a goal for me. Just now after reading a post from @everlove, in which she remarked that said she was in bed at her home, rather than at steemfest for her bday this year. I thought , _One day I will make it to a meet up..._ I then searched steemfest for the first time EVER and you popped up. I'm taking my morning pain relief, sending you a virtual bear hug and am printing some of @everlove's collaborative pieces that I missed this year. I also missed the deadline for submitting my art for steemfest, which upset me more than I expected. I don't use the term spoonie much , but I know what it is to be one. I think I only have one spoon sometimes. I set basic goals that I don't achieve. Trying to stay ahead , not just of the basic physical requirements, but the emotions of a fraction of a life lived is a challenge. Today I an going to create a vision board / work using the images of collaborations I missed this year. A year that slipped away . I have my sights on next year. Not steem fest, but a year lived with increased hope and gratitude for my one bendy (I have EDS) spoon.
post_id | 65,770,984 |
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author | girlbeforemirror |
permlink | re-redrica-want-some-oxy-a-hug-initiative-i-m-doing-at-steemfest3-in-support-of-spoonies-239cc7c0dc61e-20181109t205954353z |
category | steemfest |
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Hug. My wife has fibromyalgia so I know a bit about what it's like to live with chronic pain. Sometimes you just need to take some time for you. Wish you success in achieving your goals. Hugs.
post_id | 65,792,216 |
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author | mrlightning |
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The 2 conditions have so many cross over symptoms and co morbidities, I sometimes wonder if they are the 2 conditions rheumatologist throw at you until they find the inflammatory markers. My mother was diagnosed with fibro for years, now that my sister and I (and my kids) have this dx they think maybe she has EDS. She also has developed lupus and thyroid /parathyroid cancer, they are also frequent occurrences. Send my sincerest _gentle_ squeeze to her. She knows, you know me. The assumptions, prejudgement, underestimation of pain. xxxxxxxxx She also knows how those judged as weak are warriors. Like the spoon bending magic heroines in this post 💃💃💃💃💪💪💪💪
post_id | 65,819,773 |
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author | girlbeforemirror |
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long time no read - so I am happy to have stumbled on you here (I write often on needleworkmonday, and I am the one with the migraines 💩💩💩💩, not sure you remember, as we did not interact so much) I send you a big virtual and wooly hug. And I love to hear from you and that you are holding up, although you have to fight pain. So: HUUUUGGGGG <3
post_id | 65,807,440 |
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author | neumannsalva |
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Are you kidding! Of course I remember, you are amazing! My inspiration! I have been meaning to do some needle work posts (even though my things are half finished and crappy), I have been trying. You are not a forgettable woman by any means, even from a scatter brain like me who is completely distracted by my own little world. I will gather and post all my half finished atrocities. I have one Cardigan / blanket with arm holes (half finished), and a buckled rag mat for my son's room (also half finished). My daughter asked me to make scrunchies (yes, like in the 80s _they are back_ ), even some of them don't have elastic yet. I did sew the button back on my husbands pants when it pinged off the other morning. Black pants and black button, red cotton. 😂 😘😘😘😘😘
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Ohhh now I am blushing and feeling very warm and loved. And it is so great to hear you managed some projects - and it is totally indifferent if they are finished. You would not believe how many half-finished things I have lying around and there may be some projects in my shelfs which are so ugly/full of mistakes/completely unfitting that I close my eyes and pretend that they are not here :-DDD And sewing scrunchies is lovely. I love to wear them and tried to make some, but they came out much to narrow. And with the buttons.... they are my nemesis. I do not know why. I hate sewing buttons on, (but I love knitting cardigans - a contradiction - sigh) so kudos to you. You sewed the button on. For your husband. I often try to ~~persuade~~ ~~coax~~ force my husband to sew buttons on my knitted cardigans. He sometimes does it to avoid a marriage crisis (ok, I think he does it, because he is lovely). And black with black and red: I would call it art <3
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