<hr /> # <center>It greatly saddens me to report that Elavil is not an option.</center> <hr /> http://i.imgur.com/20qR9Df.jpg <br> For some people who take elavil for IC it causes retention which worsens IC symptoms by making voiding very difficult. I ended up with much worse symptoms after a week of using it even though I started being more strict with my diet and cutting out all acidic foods. I knew this was a possibility going into it but I had hoped to be one of the people who got great relief of symptoms when taking it rather than people whose IC worsened. Loss of money and now I have all these dumb pills. >_> ## Don't worry I am not giving up. I think I am hard-wired to never give up. I may get discouraged and lost but as long as I am alive I will keep fighting to have a life that I can actually partake in. Currently, this is not the case. I am still completely room-bound due to overwhelming, painful, debilitating symptoms. But I am more determined than ever to overcome them. I have moved my research onto what I can do at home. I will go to whatever lengths needed to find myself some relief. Nobody should live in constant physical pain, unable to leave their home. I'm going to get my life back. I'll tell ya H'what. http://i.imgur.com/vWAwyqs.jpg ## So, what's the next step? Well, there are multiple things left for me to try. I cannot currently get to a doctor still so I will have to be crafty in the mean time. I found out from @healthiswealth, who suffered for 8 years from IC, that I can actually give myself bladder instillations at home. This isn't even something *crazy* and scary but actually something doctors will often advise patients to learn when the appointments are too much for them. I can buy catheters and DMSO online. This can be a long, and sometimes, painful process but I have heard of people going into full remission after a few months of instillations so there is no way it is being overlooked. I personally plan to dilute it with sterile water. Aside from that, I also found out some people have amazing results from certain drugs such as, surprisingly, xanax. Now, obviously this cannot be a long-term solution but it could give me relief enough to go out and handle appointments and get on the right track. So, I will experimenting with different things until I find something that gives me relief enough to tackle my days. I will then use them sparingly on days I plan to go out. Oh boy! The thought of going outside for a day? I can't even remember my pre-IC life clearly. I know I walked for hours and hours and biked for miles but it's such a foreign concept to me now after years of suffering. When I go out now it's horrendous, painful, and very rushed. So, here I am. Trying the next thing. Off to the drawing board. I can't lie and say I am not at all upset at this outcome but I am glad I am getting so proactive and not letting anything stand in the way of me and my health. I **will** find relief. It is just a matter of time, trials, and tribulations. *I'll do an update next time something changes or I try a new method for relief.* <a href="https://steemit.com/@lauralemons"> <img src="http://i.imgur.com/vU6WOKH.jpg " alt="HTML tutorial" style="width:42px;height:42px;border:0;"> </a>
post_id | 3,216,597 |
---|---|
author | lauralemons |
permlink | discontinuing-use-of-ic-medication-due-to-side-effects-what-s-next-ic-health-update |
category | life |
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created | 2017-05-30 21:41:57 |
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root_title | "Discontinuing use of IC medication due to side-effects. What's next? [IC Health Update]" |
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---|---|---|---|---|---|
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teamsteem | 0 | 1,659,816,276,447 | 35% | ||
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klye | 0 | 174,334,018,879 | 100% | ||
stellabelle | 0 | 614,199,599,836 | 100% | ||
kenny-crane | 0 | 110,167,858,630 | 100% | ||
will-zewe | 0 | 2,308,184,873 | 100% | ||
dahaz159 | 0 | 1,037,916,461 | 35% | ||
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fiona777 | 0 | 3,231,184,544 | 100% | ||
bola | 0 | 3,513,362,376 | 10% | ||
sulev | 0 | 34,934,106,309 | 100% | ||
dolov | 0 | 232,733,627 | 1.05% | ||
virtualgrowth | 0 | 4,619,865,245 | 10.5% | ||
lamech-m | 0 | 1,796,061,297 | 35% | ||
sethlinson | 0 | 2,213,236,158 | 10% | ||
hilarski | 0 | 34,276,008,708 | 20% | ||
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crowe | 0 | 140,996,835 | 100% | ||
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clayboyn | 0 | 12,305,281,286 | 100% | ||
jang | 0 | 11,352,714,589 | 55% | ||
thegame | 0 | 192,953,750 | 3.5% | ||
steembets | 0 | 234,309,010 | 3.5% | ||
steemsports | 0 | 3,268,277,248 | 5% | ||
steemland.com | 0 | 196,452,391 | 3.5% | ||
breezin | 0 | 3,487,309,155 | 100% | ||
baerdric | 0 | 2,609,312,127 | 100% | ||
steemspoker | 0 | 2,700,597,343 | 35% | ||
steemprentice | 0 | 5,963,268,167 | 10.5% | ||
omarrium | 0 | 2,287,581,086 | 35% | ||
mallorcaman | 0 | 60,295,147,292 | 99% | ||
lukinsawyer | 0 | 355,074,203 | 35% | ||
pikto | 0 | 2,756,188,396 | 100% | ||
tonylondon | 0 | 298,568,609 | 35% | ||
davidgermano | 0 | 2,023,122,263 | 70% | ||
evildeathcore | 0 | 794,976,735 | 35% | ||
syn999 | 0 | 12,989,611,655 | 100% | ||
rdickey | 0 | 167,471,226 | 100% | ||
jraysteem | 0 | 303,983,550 | 100% | ||
stoke | 0 | 485,687,146 | 100% | ||
classicstar | 0 | 1,559,713,367 | 100% | ||
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I am curious, have you ever tried CBD oil? Depending on where you live it may not even be an option. It gives you the healing benefits of marijuana without the "high" from the THC. It does wonders for many people with many different things.
post_id | 3,216,704 |
---|---|
author | clayboyn |
permlink | re-lauralemons-discontinuing-use-of-ic-medication-due-to-side-effects-what-s-next-ic-health-update-20170530t214525425z |
category | life |
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created | 2017-05-30 21:45:24 |
last_update | 2017-05-30 21:45:24 |
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root_title | "Discontinuing use of IC medication due to side-effects. What's next? [IC Health Update]" |
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Yeah. No huge benefits for IC sadly. Might have eased my anxiety a little and gave me cool dreams.
post_id | 3,216,762 |
---|---|
author | lauralemons |
permlink | re-clayboyn-re-lauralemons-discontinuing-use-of-ic-medication-due-to-side-effects-what-s-next-ic-health-update-20170530t214722785z |
category | life |
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root_title | "Discontinuing use of IC medication due to side-effects. What's next? [IC Health Update]" |
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Damn, I'm sure you have probably tried lots of things. @rebeccaryan has some really good edible recipes if you live somewhere conducive to that lifestyle. Edibles will probably knock you out for a while, but my thoughts are "if you can treat epilepsy and cure cancers with it, who knows what else it can do." :) Good luck and stay strong!
post_id | 3,216,893 |
---|---|
author | clayboyn |
permlink | re-lauralemons-re-clayboyn-re-lauralemons-discontinuing-use-of-ic-medication-due-to-side-effects-what-s-next-ic-health-update-20170530t215210789z |
category | life |
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root_title | "Discontinuing use of IC medication due to side-effects. What's next? [IC Health Update]" |
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lauralemons | 0 | 9,169,827,293 | 100% |
Hang in there... big hugs from me :)
post_id | 3,216,708 |
---|---|
author | mallorcaman |
permlink | re-lauralemons-discontinuing-use-of-ic-medication-due-to-side-effects-what-s-next-ic-health-update-20170530t214528793z |
category | life |
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created | 2017-05-30 21:45:33 |
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voter | weight | wgt% | rshares | pct | time |
---|---|---|---|---|---|
lauralemons | 0 | 9,169,827,293 | 100% |
Thank you! <3 (hugs)
post_id | 3,216,789 |
---|---|
author | lauralemons |
permlink | re-mallorcaman-re-lauralemons-discontinuing-use-of-ic-medication-due-to-side-effects-what-s-next-ic-health-update-20170530t214832273z |
category | life |
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created | 2017-05-30 21:48:33 |
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Sorry to hear about the setback. At least there's another possible way of relieving your symptoms. Sucks that the medication didn't help. Positive thoughts!
post_id | 3,217,032 |
---|---|
author | holoz0r |
permlink | re-lauralemons-discontinuing-use-of-ic-medication-due-to-side-effects-what-s-next-ic-health-update-20170530t215722591z |
category | life |
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created | 2017-05-30 21:57:24 |
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root_title | "Discontinuing use of IC medication due to side-effects. What's next? [IC Health Update]" |
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lauralemons | 0 | 9,169,827,293 | 100% |
It's pretty bleak with IC. Many people never get relief. But I won't let myself go there until I have tried every option. More research needs to be put into this devastating disease.
post_id | 3,217,864 |
---|---|
author | lauralemons |
permlink | re-holoz0r-re-lauralemons-discontinuing-use-of-ic-medication-due-to-side-effects-what-s-next-ic-health-update-20170530t223152854z |
category | life |
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created | 2017-05-30 22:31:54 |
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Thanks for the thoughts. :)
post_id | 3,217,871 |
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author | lauralemons |
permlink | re-holoz0r-re-lauralemons-discontinuing-use-of-ic-medication-due-to-side-effects-what-s-next-ic-health-update-20170530t223214577z |
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Hugs sent to you for comfort definitely... your "IC" sounds to be a difficult and painful condition to be going through. What does "IC" stand for? And what are "the symptoms".. i understood it has to do with your urinary system? Stay strong 💓
post_id | 3,219,965 |
---|---|
author | patriciakm |
permlink | re-lauralemons-discontinuing-use-of-ic-medication-due-to-side-effects-what-s-next-ic-health-update-20170531t001750649z |
category | life |
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created | 2017-05-31 00:17:51 |
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I've written whole blogs about the illness as there are many symptoms. Imagine a UTI on steroids and imagine it is 24/7 for life. I have been dealing with it for years and now cant go out, cant have sex, can't eat most foods. Constant need to pee. Pressure on bladder. Urgency. Pain. Burning. Difficulty actually being able to pee. The list goes on. ( ._.) Thank you. ((hugs))
post_id | 3,220,004 |
---|---|
author | lauralemons |
permlink | re-patriciakm-re-lauralemons-discontinuing-use-of-ic-medication-due-to-side-effects-what-s-next-ic-health-update-20170531t001955360z |
category | life |
json_metadata | "{"app": "steemit/0.1", "tags": ["life"]}" |
created | 2017-05-31 00:19:54 |
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Oh Laura, I am so sorry . I used to get kidney infections and cysticis a few times a year as a child... intrusive but beneficial through my urethra (or urether?.. no longer sure) investigation, all got "fixed"! It was a blockage of some sort and the investigation reopened a proper passage! A thought came to my mind when I read your name, i am serious! Lemons re establish a healthy PH... Try pure water with a twist of an organic lemon drinks all day and see if it relieves the burning when passing. Hugs.
post_id | 3,220,217 |
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author | patriciakm |
permlink | re-lauralemons-re-patriciakm-re-lauralemons-discontinuing-use-of-ic-medication-due-to-side-effects-what-s-next-ic-health-update-20170531t003112108z |
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Sorry that you are in pain. I know what it's like to have a problem with very little in the way of symptom treatment and nothing available for a cure. Even the best and kindest doctors have irritated me after several rounds of unhelpful inconvenience. Best wishes and good luck finding something that helps you.
post_id | 3,220,045 |
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author | baerdric |
permlink | re-lauralemons-discontinuing-use-of-ic-medication-due-to-side-effects-what-s-next-ic-health-update-20170531t002222506z |
category | life |
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root_title | "Discontinuing use of IC medication due to side-effects. What's next? [IC Health Update]" |
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Yeah thats really the issue is that even doctors are stumped due to a lack of research. It is frustrating for everyone involved but can be maddening for the suffererer. I hope in the future more is known about this awful disease. Thank you for the wishes. :)
post_id | 3,220,073 |
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permlink | re-baerdric-re-lauralemons-discontinuing-use-of-ic-medication-due-to-side-effects-what-s-next-ic-health-update-20170531t002350350z |
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beneficiaries | [] |
max_accepted_payout | 1,000,000.000 SBD |
percent_steem_dollars | 10,000 |
author_curate_reward | "" |
voter | weight | wgt% | rshares | pct | time |
---|---|---|---|---|---|
baerdric | 0 | 2,609,312,127 | 100% |