The hardest thing to my understanding is not just living through it but is accepting that you have the disability that just wont go away. For that I applaud you. 
With the people that surround me, I can see that part is the hardest for them. One of those people is my friend's son who has Tourette's syndrome. Along with being teased and bullied by others, having to accept his disability is just starting and it is very hard. People's understanding to disabilities are also minimal. Thinking Tourette's is just outbursts of swearing but it isn't. I even had someone tell me they want to have the disability just cause it seems like fun to shout out 'shit' or 'fuck' randomly. Thinks its hilarious. 
Writing your journey is not only beautiful but also filling us with more information. With knowledge comes acceptance and less ignorance. 
Thank you for writing about it. For me personally, I appreciate you for doing this. It is hard for just one person to 'spread the word' to help people understand instead of point fingers. 
I'd love you hug you right now, what you have done is huge! I am sure you know this. Opening up to the world on steemit must have gotten your heart pumping just to write it, then pressing the post button, even more. High 5 man! Be you, be beautiful!